BRCA Resources

BRCA & CANCER RESOURCES
 


When I first found out that I was BRCA2 Positive I scoured the internet for answers to my thousands of questions. Which, if you've ever taken to Google to self-diagnose you know how horrible that can be! There's a TON of information out there that is scary and just down right wrong. There is also info out there that is still just as scary but correct which is where I would want to be any day. So below I've listed some information websites that my breast surgeon has recommended to me and I want to share them with you!

Hereditary Breast & Ovarian Cancer Resources

FORCE
http://www.facingyourrisk.org
FORCE is a nonprofit organization for women who are at high risk of developing breast and/or ovarian cancer due to their family history and genetic status and for members of families in which a BRCA mutation may be present.

Bright Pink
http://www.bebrightpink.com
Bright Pink is a national non-profit organization that provides education and support to young women who are at high risk for breast and ovarian cancer.

Breast & Ovarian Cancer Resources

National Ovarian Cancer Coalition (NOCC)
http://www.ovarian.org
The NOCC's mission is to raise awareness and to promote education about ovarian cancer.

Susan G. Komen Breast Cancer Foundation
http://www.breastcancerinfo.com
The "Komen Facts for Life" features a section on genetics and breast cancer.

Young Survival Coalition
www.youngsurvival.org
The Young Survival Coalition is dedicated to the critical issues unique to young women and breast cancer.

Pancreatic Cancer Resources

Pancreatic Cancer Action Network
http://www.pancan.org
The Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.

National Pancreatic Cancer Foundation
http://www.npcf.us/
The National Pancreatic Cancer Foundation is a foundation whose mission is assisting those who suffer with pancreatic cancer, and their families across the nation.

General Cancer & Genetics

National Cancer Institute
http://www.cancer.gov
This site had valuable cancer related health information on more than 200 cancer types, clinical trials, cancer statistics, prevention, screening, risk factors, genetics, and support resources.

American Cancer Society
http://www.cancer.org
The American Cancer Society is a voluntary national health organization with local offices around the country.

Genetic Alliance, Inc.
http://www.geneticalliance.org
The organization supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies.

Understanding Genetic Testing
http://nci.nih.gov/sciencebehind
This site had a slide show that provides information about the role of DNA, chromosomes and genes in hereditary cancers.